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Clinical trial genetic data exposed in academic database breaches

Original: Clinical trial data including genetic and medical history information has been exposed in academic research database bre

Breaches of academic research databases have exposed clinical trial data, including genetic and medical history information, affecting thousands of study participants. Privacy advocates are urging people to use their HIPAA rights to request their medical records and a list of everyone those records were shared with, and to correct errors. The incident has reignited debate over how universities and research institutions safeguard sensitive participant data.

Why now: Fresh reports of research database breaches exposing sensitive genetic data have raised fresh privacy concerns among patients and participants.

academic research databasesclinical trial participantsHIPAA

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Evidence

• Clinical trial data including genetic and medical history information has been exposed in academic research database breaches affecting thousands of participants. So what: under HIPAA you can get your medical records and a list of who they went to. Request both, and correct… · indigoprivacy · 3

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