Mmastodon ScienceBiology first seen 1 d ago, last 4 min ago, peak #11

Clinical trial data exposed in academic database breaches

Original: Clinical trial data including genetic and medical history information has been exposed in academic research database bre

Breaches of academic research databases have exposed clinical trial data, including genetic and medical history information, affecting thousands of trial participants. Privacy advocates are urging people to exercise their rights under HIPAA, which allows patients to obtain their medical records and a list of everyone those records were shared with, and to request corrections where needed.

Why now: The exposure of sensitive genetic and health data raises concerns about privacy rights and what participants can do to protect themselves.

academic research databasesclinical trial participantsHIPAA

Open on mastodon →

Evidence

• Clinical trial data including genetic and medical history information has been exposed in academic research database breaches affecting thousands of participants. So what: under HIPAA you can get your medical records and a list of who they went to. Request both, and correct… · indigoprivacy · 3

API: https://socialmediatrends-api.osmike.com/v1/trends/122006